I am often told I am so brave for performing my play Dementia Man, An Existential Journey! Rabbi Berkowits was an example of what it truly means to be brave and has inspired me to continue to live my best life everyday.
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I have been thinking about the reasons that I, in the face of a possible terrible future, find the energy and point of view of trying to imagine a journey of meaning and impact facing my diagnosis. I want to attribute at least part of that to my friend, Rabbi Laszlo Berkowits, and what he with his life has taught me – never give up. I am often told I am so brave for performing my play Dementia Man, An Existential Journey! Rabbi Berkowits was an example of what it truly means to be brave and has inspired me to continue to live my best life everyday.
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Continue with me on my journey and hear some of the recent challenges I experienced preparing Seder dinner with having a neurocognitive disorder. Click here to watch. This National Poetry Month, take a listen to three original poems written by Samuel A. Simon, in response to his diagnosis of Early-Stage Alzheimer’s Disease. For the month of April, I will be sending a signed copy of each of these poems to anyone who donates any amount to Dementia Man on my Fractured Atlas page! Click here to donate today. 1. "Going Away" (the moment of receiving my diagnosis) 2. "Sam's Psalm" (reflects my transition in this disease) 3. "Us" (written for my wife Susan during her journey with breast cancer) Take a listen to my reflections on the passing of a Hal Malchow, an influential campaign consultant who had Alzheimer's Disease and traveled to Switzerland for a physician-assisted euthanasia, plus about today’s solar eclipse. It may be April 1st, but this is not a joke! I can actually be in two places at once. Listen to this week's quick video blog on my Dementia Man YouTube Channel here. |
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